Showing posts with label AIDS. Show all posts
Showing posts with label AIDS. Show all posts

Tuesday, 13 August 2013

Pride without prejudice

  

"What is pride? A rocket that emulates the stars."
(William Wordsworth)
 
The celebration now known as "Brighton Pride" is now in it's 40th year. Incredibly, the first march or parade was a smallish affair organised by the Sussex Gay Liberation Front in 1973; a mere seven years earlier and such a gathering of predominantly openly"out and proud" homosexuality could have culminated in custodial sentences. As in recent years, this Brighton Pride Weekend of 3rd and 4th August saw gay police officers from the city marching at the height of the parade. For the sixth successive year, they were joined by gay officers from the Hampshire and Isle of Wight constabularies, men and women and all proudly in uniform.
The Pride festivities are now organised by a specially created community-interest company, enabling and producing events that celebrate lesbian, gay, bi-sexual and trans-gender lives. The weekend now extends beyond the parade and the music festival in Preston Park to include a city-wide arts and film festival. Brighton Pride always aims to raise not only awareness, smiles and spirits but also funds for local community groups and charities. These essentially include HIV and AIDS support groups. As a former voluntary carer and fundraiser for the Terrence Higgins Trust, I'm always heartened to see THT's friendly and inclusive presence at such events. This year, it's estimated that more than £40,000 has been raised for the collective "Rainbow Fund".
In fact, general inclusivity across the parade and celebrations was bright and evident in Brighton this year. I was working over the Pride weekend and didn't really intend to join the parade or activities, but the theatrical enthusiasm was infectious. The theme of the festivities this year was gay icons across the arts and media. I found myself queuing in my local Aldi behind two male Monroes and ahead of a variety of Freddie Mercury and Cher lookalikes. Even iconic-wannabees fancy a bargain. I wandered past what I refer to as my local cheap-frock shop, only to find they were offering multi-coloured tutus as "buy one get one free". The rather skimpily curtained changing cubicles were full of delightful but quite large gentlemen taking advantage of the tutu sale: I had my doubts about their ballet credentials.
My one unwitting concession to the very sunny Pride weekend was to wear a homestead sundress and a straw cowboy hat from the 99p Shop. Along the walk home I was serenaded and yeehaw-ed at by a variety of cowboys, cowgirls and Native American Indians. Clearly, I had forgotten about the impact of the (beautiful) film "Brokeback Mountain"; and the cherished close partnership of The Lone Ranger and Tonto. As I emerged back onto Lewes Road, a Lady GaGa, Bugs Bunny, complete with carrot, and two very male, very bare-chested nuns tickled me as I went past their group. Turns out that Sally Field as The Flying Nun is a definite gay icon - who knew? The tickling incident was a bit of a shock although not unpleasant; I still haven't worked out where dear ol' Bugs Bunny fits into all this.
Attendance estimates for the weekend seem to vary wildly this year too; from the very conservative police figure of 30,000 to the extravagant 150,000 from some of the official sponsors. As with most things in life, the truth rests somewhere in the shade of the two extremes. As George Bernard Shaw suggested, life is not so much about finding yourself as it is about creating yourself. Obviously the good-natured openness and tolerance I witnessed locally extended across the city and over the whole weekend: there were about forty arrests in the city that weekend, probably the same as on any other hot summer weekend at the seaside.
When I first moved to Brighton, I found the tone of Pride quite different. Always promoted as a family celebration, it started to feel a little exclusive to me as a heterosexual female; although I felt saddened rather than threatened. My sexuality and my beliefs, including my Catholicism, sit very comfortably with dear friends made over the years who happen to be gay and the respect and affection I have for the gay community in Brighton. Essentially, I believe Brighton Pride must be inclusive to all ages, genders, sexualities and values to remain valid as well as supported. The point is that every gay man and woman is someone's son, daughter, brother, sister, possibly someone's parent; a police officer, a nurse, your neighbour, a friend.
I have no problem with Brighton Pride being proud, as long as it remains valiant rather than becoming arrogant. I'd actually like to see a celebration of self-worth extend beyond the gay community in Brighton, indeed beyond the city. A few days after Pride 2013, I've had to yet again complain to the city council about the street I live in being used as a little city dump. One person leaves a broken vacuum cleaner in the road, another person leaves a chair, then a large broken mirror appears propped up perilously against the side of a house. The street cleaner still isn't cleaning one side of the road, presumably because of the debris on the pavement.

This area is made up of whole streets of largely rented properties and this is the heart of campus country. After an attempted break-in at my little house the other week, a well-intentioned policeman sympathised that my area is disadvantaged and therefore resentful He noted that if people haven't grown up here or simply feel "dumped" here, the lack of strong roots can destroy the growth of future community. I do feel that when folk have no sense of connection with where they find themselves in life, there's no concept of pride in where they live and sadly, sometimes in how they treat others.
"Pride" is a widely used yet perhaps little understood word. With a negative connotation, often synonymous with "hubris", it refers to an inflated sense of self, often at the expense of all else; in Christianity, one of the Seven Deadly Sins. Yet the word itself originates from the Latin "prodis" - "to be of use or service". Through time, this evolved into the Old French and English words for valiant and noble.
With a positive connotation, pride can refer to a sense of attachment towards one's own choices, beliefs or actions, and towards others. It can be the worthy product of self-reflection, a sense of appreciation, a feeling of fulfilment or belonging. There's a sense of exaltation in the mindset behind Brighton Pride which I feel St Augustine himself would have appreciated. His take on pride without prejudice was that we should have a sense of our own "excellence", to the glory of God who created us; including that bouncy young man so wonderfully dressed as Bugs Bunny. And my fabulous bargain Stetson.
 
 
"Vanity and pride are different things, though the words are often used synonymously. A person may be proud without being vain. Pride relates more to our opinion of ourselves; vanity, to what we would have others think of us."
(Jane Austen)
 
 
 
 
The Rainbow Fund
Sussex Community Foundation
Falcon Wharf
Railway Lane
LEWES
BN7 2AQ
 
 
 
  
"Pride makes us artificial and humility makes us real."
(Thomas Merton)

"Pride perceiving humility honourable, often borrows her cloak."
(Thomas Fuller)
 
"Pride does not wish to owe and vanity does not wish to pay."
(Francois de la Rochefoucauld)

 (Photo: Gigi, album)
Yeehaw x


"Wake Me Up When It's All Over" Avicii
 
 

Sunday, 30 December 2012

The Power of Love


"Tell me, what's Love?" said Youth, one day, 
To drooping Age, who crossed his way, 
"It is a sunny hour of play, 
For which repentance dear doth pay, 
Repentance! Repentance! 
And this is Love, as wise men say."
(St Thomas More)


The American critic George Jean Nathan said that: "Beauty makes idiots sad and wise men merry"; there is of course a fine line between appreciation and criticism. I went for an early morning walk today and decide to get a cup of tea along the bleary-eyed seafront. The very disgruntled and shuffly woman serving was largely on her mobile 'phone, berating her partner to one girlfriend after another. His crime? He'd bought her beauty treatments for Christmas. "Is he having a laugh or what?? I'll give him ******* luxury spas mate!" She was clearly insulted. As one of the many who buys her own Nivea from the supermarket (and, I have to say, makes far better tea), I wanted to tell her that a smile and a look of appreciation or even interest would serve her far better than any day at the spa.
The day after Boxing Day, I came back to Brighton to work and was hurrying along very absent mindedly when I passed a woman pushing her empty buggy. Her very little boy was stomping along beside her. He was wearing a Santa hat and trying to keep it off his eyes. I turned back to smile at him and he promptly told me it had been his birthday on Christmas Day, the same day as Jesus' birthday.
"Oh?"
"But he's a lot older than me. I'm four."
"Mmm, how old do you think He is?"
"Don't know. Older than Dad..."

His mum started giggling as he burbled away.
"And my Dad's very old. But Mum is older..."
I looked at her properly and she might have been all of thirty-five on a bad day.
"Mum's so old that Dad has to buy her special cream for her face..."
His Mum gave me the most beautiful smile and whispered:"Only Avon stuff. But he likes me to have it. Not sure it's working!"
I wanted to tell her that whatever it was, it was clearly "working" for all of them.



I admit that I cry at Christmas commercials; only the really good ones, mind. Over the past couple of years, John Lewis seems to have hacked into my hormonal hard drive. This year's commercial, with the snowman determined to provide his snow-woman with gloves, scarf and a hat, has made me wipe my eyes with mince-pie fingers several times. Of course, the lovely matching woollens could only be for decoration - she's a snow-woman for pity's sake - and might well add to an eventual demise by meltdown. But the production and the sentiment are beautiful. Much as I love Gabrielle Aplin's version of "The Power of Love", I wanted to include the original, glorious song by Frankie Goes To Hollywood, cheesy and kitsch nativity video and all.
The song still sounds magical to me, combining all the secular and spiritual energies of love. Singer and composer Holly Johnson, himself no stranger to controversy, would later say that: "I always felt like "The Power of Love" was the record that would save me in this life," Written at the height of the 1980s' AIDS crisis in the UK, the song became something of a bonding anthem for anyone affected or moved by the epidemic, later lending it's name to a U.S. based charity, working to bring an end to HIV / AIDS in Africa. Of course, the charity is still very much in evidence today; the virus in Africa is still rampant and merciless, as written elsewhere in this blog.
Love really is the greatest gift of all, whether it's in a jar of face-cream, a life saving serum, or just a smile.


www.poweroflove.org




That John Lewis commercial...
....and the wonderful, original "Power of Love", by Frankie Goes To Hollywood.

"I'll protect you from the hooded claw,
Keep the vampires from your door; 
I'm so in love with you, 
Purge the soul,
Make love your goal.
Dreams are like angels,
They keep bad at bay:
Love is the light 
Scaring darkness away" 
(Holly Johnson)


"Everything has it's beauty, but not everyone sees it.
They must often change who would be constant in happiness or wisdom."
(Confucius)

Saturday, 1 December 2012

The Colour Red

"Be the change you wish to see in the world."
(Mahatma Gandhi)


Today, I pinned on a small red ribbon with frayed ages and a rusty little safety pin with a great deal of reflection and also some pride, even though I would be spending most of the day at home. I have done this on the same date with the same red ribbon for many years now. 1st December each year has been World AIDS Day since 1988. HIV / AIDS (Human Immunodeficiency Virus infection / Acquired Immunodeficiency Syndrome) was first clinically observed some years before, in 1981. In 1990, the New York based "Visual AIDS Artists Caucus" created a visual symbol to demonstrate compassion for people living with AIDS and those caring for them. Inspired by the yellow ribbons honouring American soldiers serving in the Gulf war, they chose the colour red for its:"connection to blood and the idea of passion -- not only anger, but love." It may sound trite, even odd if I say that I have a tender spot for AIDS: becoming involved with people affected by, living and dying with AIDS changed my little world and made me a stronger and, I believe, nicer person.
The Terrence Higgins Trust is a UK-based charity that was formed in London in 1982, named after one of the first named people to die from AIDS disease in the UK. It was formed by his partner and friends in an attempt to both personalise and publicise the disease. Many years ago, I was a voluntary carer and fundraiser with THT after my best friend at that time, a gentle and funny gay male nurse named John, took his own life to escape the stigma of what was then a deadly diagnosis. He was 21; he had apparently contracted the virus from his first and only boyfriend.
As a carer, I helped in a donated "safe house" in South London, where shelter, support and eventually palliative care was offered to up to four people at a time living with AIDS; where family was unaware, absent or unsympathetic. Treatment was less effective then and awareness about the condition and it's transmission was tainted by scandal and bigotry. My day-job colleagues didn't want to know exactly what I did in "that house" and my mother and sister couldn't understand why I did it. We fed and bathed, medicated and cleaned, emptied bed-pans. We were there. I drooped after a couple of years and following the deaths of all those I had been helping to look after; many house volunteers had been there longer and were still there when I left. It was at times heart-wrenching and scary; to this day, it remains the best, finest thing I've ever done.
In most parts of the developed world, HIV / AIDS is no longer the graphically painful but rapid death sentence it once was. Yet AIDS  is still a global pandemic: by 2010, around 35 million people had contracted the disease worldwide. Since it's recognition in 1981, more than 32 million men, women and children across the globe have died from what was initially dubbed "a gay plague" by the media. It's estimated that 3.4 million of those currently infected are under fifteen years of age. South Africa presently has the largest population of people living with HIV / AIDS, nearly six million. In sub-Saharan Africa, life expectancy in the worst affected countries has fallen drastically: from 65 to 35 years in Botswana. South East Asia is the second most affected region, estimating at least 4 million cases. Infections in the Middle East and North Africa have risen by more than a third over the past decade, with a notable rise in new infections also recorded in eastern Europe. In the USA and also across the UK, it's believed that a quarter of all those infected are unaware of their status. AIDS is the sixth leading cause of death among men and women aged 25 - 44 in the States. It may take you 10 minutes to read this blog entry; every 10 minutes, someone in the States is infected by the HIV virus.
Many campaign groups say the original stigma associated with HIV / AIDS remains as big a problem as the disease itself. In China, there are reports of  some hospitals turning away people with HIV infections and refusing surgery for patients who test positive for the virus. In vulnerable communities such as Ethiopia and Zambia, reported abuse of people living with HIV / AIDS remains high. Nearly half of all countries do not have laws in place that protect people living with the virus from discrimination. The AIDS Healthcare Foundation in Nigeria admits that anti-AIDS bigotry is still rife in a country where the disease is a taboo, commonly seen as a death sentence as "punishment". It is a fact that there is still no cure for AIDS: it is always fatal without treatment.
In the States, most patients who survive many years after diagnosis do so because of the availability of a combination of highly active antiretroviral therapy (HAART). The antiretrovirals suppress the replication of the virus in the body, allowing the helper blood cells precious time to rebuild the immune system. As a suppressant rather than a cure, HAART has been very effective for the past decade. However, the virus can become resistant to any one combination of HAART medications at any time, although genetic tests are largely available to determine whether an HIV strain is resistant to a particular drug. New medicines are still being developed to treat HAART resistant HIV. And treatment with HAART as a collection of different medications has it's own collection of complications and side effects: diarrhea, nausea, sickness and general weakness. When used over an extended period of time, these medications also increase the risk of heart attack. Of course, people responding to antiretroviral treatment can still pass on the virus through sex or shared needles; to date, there is still no vaccine against HIV. Ultimately, prevention truly is the only cure at this time.
In 2011, the United Nations signed the Political Declaration on HIV/AIDS, as a strategy to achieve universal access to HIV prevention, treatment, and care by 2015. The document marks an historic milestone on the road-map to the beginning of the end of AIDS. We need to reach 15 million people living with HIV with antiretroviral treatment by 2015: this has to be achievable; HAART therapy has already saved an estimated 14 million life years in low and middle income countries. However, around 7 million people known to be eligible for this treatment are still unable to access it. Recognised foreign aid has traditionally been the major source of funding to fight the epidemic worldwide, but for the first time in history, the UN has reported significant domestic investments by lower income countries to address their own HIV / AIDS situations. Each World Aids Day should be a time of remembrance but also of celebration of any progress and acceleration of response in recent years. We have to believe that ending this epidemic is as feasible as it is certainly affordable. 
Progressive medications can help the human body to heal and maybe even protect itself from this virus, but we also need to eliminate the enduring stigma and discrimination against people living with and affected by the disease. Fear and ignorance continue to undermine efforts to provide services to prevent, diagnose, and treat HIV/AIDS. Current restrictions on the entry, stay, and residence of people living with HIV in many countries lack scientific basis and are often relics of the media-fueled terror dating from early in the epidemic. This is a virus, a disease; as essentially associated with blood as anemia, sickle cell and leukemia, as identifiable with "behaviours" as diabetes, lung cancer and heart disease. It's been repeated endlessly over the past decades that the virus itself is a stranger to discrimination or preference. Personally, I can vividly recall pushing a beautiful but visibly fragile young man in a wheelchair to local shops only to find that ordinary people with their children in tow and shopping in hand felt moved to spit at both of us and wish him a speedier death. I pray this no longer happens on the streets of south London; I extend my prayers to the other corners of our world where such distortion of the human spirit is a daily occurrence.


*For John C, Campbell, Carl, Eddie, Hayden, James and Paolo and the others I  was privileged to have known for that short while*


"AIDS occupies such a large part in our awareness because of what it has been taken to represent. It seems the very model of all the catastrophes privileged populations feel await them."
(Susan Sontag)

"The global HIV/AIDS epidemic is an unprecedented crisis that requires an unprecedented response. In particular it requires solidarity -- between the healthy and the sick, between rich and poor, and above all, between richer and poorer nations. We have 30 million orphans already. How many more do we have to get, to wake up?"
(Kofi Annan)




www.worldaidsday.org

www.tht.org.uk 

www.avert.org/children.htm 

www.one.org 

susshivchap@gmail.com




"One"  U2



"We're one, but we're not the same;

We get to carry each other
Carry each other"
(Paul Hewson / Bono)